Advocacy Organizations
From WikiGenetics
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- Alagille Syndrome Alliance
- Alpha-1
- Alpha-1 Association
- Angioma Alliance
- Associação Brasileira dos Portadores da Doença de Gaucher (Gaucher Brazil)
- Canadian Fabry Association
- CARES Foundation
- Chromosome 17
- Cutis Laxa Internationale
- Cutis Marmorata Telangiectatica Congenita (CMTC)
- Fetal Hope Foundation
- Five P Minus Society
- Fragile X Research Foundation (FRAXA)
- In Need Of Diagnosis, Inc. (INOD)
- Isodicentric 15 (IDEAS)
- Jacob's Cure - A fight against Canavan Disease
- MLD Foundation
- National Marfan Foundation
- National Psoriasis Foundation
- Parent Project Muscular Dystrophy
- PXE International
- Syndromes Without a Name USA (SWAN USA)
- Unified to Support Metabolic Disorders
- VHL Family Alliance
- XLP Research Trust
