Alagille Syndrome Alliance

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Background

The Alagille Syndrome Alliance is a longstanding advocacy group, located in Tualatin, Oregon. The Alliance's purpose is to be the main networking resource and source of information for AGS individuals, their families, friends, and medical professionals. The Alliance is also dedicated to increasing awareness of AGS and supporting research for the AGS Community. Their volunteer staff has coordinated international symposiums and partnered with a pharmaceutical company to produce a DVD set on AGS. They are excited to have been around for 15 years, and are committed to continuing core programs and services for families to ensure they receive the information and support they need to build a better life with AGS.

Website

http://www.alagille.org/

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