Alpha-1

From WikiGenetics

[edit] Background

The Alpha-1 Foundation, based in Miami, Florida, was founded in 1995 as an advocacy organization for Alphas, individuals with Alpha-1 Antitrypsin Deficiency, and their friends and families. The Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1. Collaborating with investigators throughout the United States and Europe, the National Institutes of Health (NIH), the Food and Drug Administration (FDA), the pharmaceutical industry, and individuals with Alpha-1, the Alpha-1 Foundation works to expedite the development of improved therapies.

[edit] Website

www.alphaone.org

[edit] Links to Other Organizations

   * Advocacy Organizations
   * Academic Institutions
   * Biotech Companies
   * Government Agencies
   * Genetic Alliance
   * Laboratories
   * Law/Consulting Firm
   * Patient Registries
   * Policy Organizations/Think Tanks
   * Professional Societies
   * Other