Alpha-1 Kids

From WikiGenetics

Contents 1 Background 2 Website 3 Recommended Sites 4 Links to Other Organizations

[edit] Background

Alpha-1 Kids is a home based organization that was organized in 2006, to meet a rising need for support. They proudly send representatives to the Alpha-1 conferences, and are working to develop a model delivery system that provides medical and psychosocial support for families throughout the US whose children are diagnosed with Alpha-1. They are collaborating with CliC and the Alpha-1 Association to provide additional support to young parents and their pediatricians. Their unique and innovative fundraisers have included a national virtual golf tournament.

[edit] Website

http://www.alpha1kids.org/

[edit] Recommended Sites

[edit] Links to Other Organizations

   * Advocacy Organizations
   * Academic Institutions
   * Biotech Companies
   * Government Agencies
   * Genetic Alliance
   * Laboratories
   * Law/Consulting Firm
   * Patient Registries
   * Policy Organizations/Think Tanks
   * Professional Societies
   * Other