Angioma Alliance

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Contents 1 Background 2 Website 3 Recommended Sites 4 Links to Other Organizations

[edit] Background

One in 200-300 people are affected by Angioma. The Agnomia Alliance is an advocacy group, founded in 2002, that specializes in this disorder. They are located in Norfolk, VA. They host an annual family conference and a scientific workshop, and their mailing list reaches roughly 650 readers. They claim that GINA was one of the biggest events for them in the last few months.

[edit] Website

http://www.angiomaalliance.org

[edit] Recommended Sites

[edit] Links to Other Organizations

   * Advocacy Organizations
   * Academic Institutions
   * Biotech Companies
   * Government Agencies
   * Genetic Alliance
   * Laboratories
   * Law/Consulting Firm
   * Patient Registries
   * Policy Organizations/Think Tanks
   * Professional Societies
   * Other