Chromosome Conditions

From WikiGenetics

Unique! is a UK-based support group with US contacts. Unique! helps by:

• Acting as a family support group.
• Linking families whose children have similar clinical and/or practical problems.
• Maintaining a comprehensive and confidential computerized database detailing the lifetime effects of specific rare chromosome disorders on affected members.
• Providing family-friendly information about specific rare chromosome disorders.
• Producing a regular newsletter.
• Holding a regular conference in the UK where families and relevant specialists can meet.
• Promoting awareness and understanding or rare chromosome disorders among families, professionals and the public.
• Ensuring that involved professionals are aware of Unique! so that families may have early contact with the group if desired.
• Supporting local networks for affected families.
• Acting as a conduit between families and the research community.
• Raising funds to provide for Unique's activities in supporting and informing families.

To join Unique! & Membership:

Contact ~ Beverly Searle Unique Chief Executive Officer

  E-mail - info@rarechromo.org
  PO Box 2189, Caterham
  Surrey CR3 5GN, England
  Tel/Fax +44 (0) 1883 330766
  
  Or visit our website:
  www.rarechromo.org

  Unique! Local US-MN Contact available:

  Chris Leonzal - Unique! MN Rep
  2162 Cutters Grove Ave. #205
  Anoka, MN 55303 US
  Email. cmloaks@aol.com
  Tel. + 1 (952) 818 6880

''UNIQUE...BUT NOT ALONE!'' .--Chris 12:38, 5 September 2007 (EDT)