Cutis Marmorata Telangiectatica Congenita (CMTC)
Since its inception in 1997, CMTC has become a worldwide authority on CMTC through networking and participating in organizations such as NORD, Eurordis, and Genetic Allaince. Their 3 board members, 3 medical advisors, and 4 translators are committed to helping treat and research the condition internationally. One of their large initiatives is flying international patients into the Neatherlands (where CMTC is located) for a free medical examination. They are proud that doctors from all over the world ask advice and refer directly to us., and their president is 'ask the CMTC expert' on the VBF website.