Fragile X Research Foundation (FRAXA)
In 2005, FRAXA joined Genetic Alliance in establishing standards for accurate and credible information on genetic disorders through the Access to Credible Genetics Resources Network. FRAXA’s staff of only three serves a community of 8000, supporting research to treat or cure Fragile X syndrome. They hosted a gala in California, and keep a list of events in the EVENTS section of fraxa.org. Founded in 1994, FRAXA is located in Newburyport, MA.