Genetic Alliance

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[edit] Announcements

Look for upcoming webinar information on Genetic Alliance scheduled for July 7th.

[edit] Background

Genetic Alliance is, first and foremost, an organization dedicated to improving the quality of life for individuals with genetic disorders. Upwards of 20 years of experience as a 501(c)(3) non-profit organization goes into their efforts to coordinate with advocacy groups and provide resources for them. The GA coalition consists of more than 600 advocacy organizations that serve 25 million people affected by 1000 different genetic conditions. The coalition works to transform leadership in the genetics community to build capacity in advocacy organizations and to educate policymakers by leveraging the voices of individuals and families. Many services are offered to these organizations as members of the Genetic Alliance. Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.

[edit] Major Projects and Tools

Tools:

  • The Access to Credible Genetics Resources project
  • Customizable Family Health History Resources booklets, and a scholarship program rewarding organizations with proposals that use them creatively.
  • WikiGenetics and WikiAdvocacy, two locations to learn and share information on genetics and advice for advocacy groups.
  • A searchable Disease InfoSearch database for reliable information on a variety of conditions.
  • The Genetic Alliance Resource Repository contains resources covering organizational development, genetics, research, education, and policy.

Events:

  • Genetics Day on the Hill, helping advocacy organizations effectively represent themselves and make an impact on governmental policy.
  • A yearly Genetic Alliance Conference

[edit] Website

http://www.geneticalliance.org

[edit] Links to Other Organizations

   * Advocacy Organizations
   * Academic Institutions
   * Biotech Companies
   * Government Agencies
   * Genetic Alliance
   * Laboratories
   * Law/Consulting Firm
   * Patient Registries
   * Policy Organizations/Think Tanks
   * Professional Societies
   * Other
Retrieved from "http://www.wikigenetics.org/index.php/Genetic_Alliance"
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