Genetic Discrimination

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When considering genetic testing, a major concern often raised is the potential of discrimination based on genetic information. Since genetic test results are typically included in a patient’s medical record, patients should be aware that the results may be accessible to others. As a result, genetic test results could affect a person’s insurance coverage or employment. More than 30 states have legislation prohibiting genetic discrimination. However, the scope of these protections differs slightly from state to state. As this publication goes to print, no federal legislation has been passed despite several attempts over the last decade.

In addition, members of minority communities often fear that genetic information will be used to stigmatize them. Health providers should be sensitive to the fact that some groups may mistrust the use of genetics as a health tool.


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