MLD Foundation

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The MLD Foundation grew out of family conferences in 1999 and 2000 for MLD - metachromatic leukodystrophy. Officially founded in 2001, the Foundation facilitates compassion, increases awareness, influences research, and promotes education. The slogan “We C.A.R.E.” highlights these areas of focus, and the Foundation offers support for MLD families until a therapy and a cure are developed. The MLD Foundation reaches approximately 200 families daily and is currently facilitating the clinical trial process with several therapies over the next 36 months, starting an education and awareness program, and expanding its involvement in the International MLD Registry.


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