Parent Project Muscular Dystrophy

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Contents

Background

Parent Project Muscular Dystrophy collaborates with Genetic Alliance on the Access to Credible Genetics Resources Network. PPMD is dedicated to improving the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy and compassion. Comprised of roughly 5000 members, PPMD communicates with a total of 40,000 people through online sources. The passage of the MD Care Act of 2001 gave families more resources and hope to find a cure for Duchenne muscular dystrophy. Current initiatives include national fundraisers and continuing their work on the MD Care act. They even had an article published in Nature.

Website

http://www.parentprojectmd.org

Recommended Sites

Links to Other Organizations

   * Advocacy Organizations
   * Academic Institutions
   * Biotech Companies
   * Government Agencies
   * Genetic Alliance
   * Laboratories
   * Law/Consulting Firm
   * Patient Registries
   * Policy Organizations/Think Tanks
   * Professional Societies
   * Other
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