Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy collaborates with Genetic Alliance on the Access to Credible Genetics Resources Network. PPMD is dedicated to improving the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy and compassion. Comprised of roughly 5000 members, PPMD communicates with a total of 40,000 people through online sources. The passage of the MD Care Act of 2001 gave families more resources and hope to find a cure for Duchenne muscular dystrophy. Current initiatives include national fundraisers and continuing their work on the MD Care act. They even had an article published in Nature.