Parent Project Muscular Dystrophy
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[edit] Background
Parent Project Muscular Dystrophy collaborates with Genetic Alliance on the Access to Credible Genetics Resources Network. PPMD is dedicated to improving the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy and compassion. Comprised of roughly 5000 members, PPMD communicates with a total of 40,000 people through online sources. The passage of the MD Care Act of 2001 gave families more resources and hope to find a cure for Duchenne muscular dystrophy. Current initiatives include national fundraisers and continuing their work on the MD Care act. They even had an article published in Nature.
[edit] Website
http://www.parentprojectmd.org
[edit] Recommended Sites
[edit] Links to Other Organizations
* Advocacy Organizations * Academic Institutions * Biotech Companies * Government Agencies * Genetic Alliance * Laboratories * Law/Consulting Firm * Patient Registries * Policy Organizations/Think Tanks * Professional Societies * Other
