Sickle Cell/Thalassemia Patients Network

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Contents 1 Background 2 Website 3 Recommended Sites 4 Links to Other Organizations

[edit] Background

The Sickle Cell/Thalassemia Patients Network started as a support group for adult patients at St. John's Hospital in Brooklyn, NY. They have grown into an organization dedicated to both improving the quality of life for individuals and families living with sickle cell and thalassemia, and ameliorating the negative social and psychological impact of the condition. They were instrumental in the inception of the National Sickle Cell Partnership, and are currently looking to expand in response to recent international attention.

[edit] Website

http://www.sctpn.org/

[edit] Recommended Sites

[edit] Links to Other Organizations

   * Advocacy Organizations
   * Academic Institutions
   * Biotech Companies
   * Government Agencies
   * Genetic Alliance
   * Laboratories
   * Law/Consulting Firm
   * Patient Registries
   * Policy Organizations/Think Tanks
   * Professional Societies
   * Other