Recent changes
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13 October 2008
- (diff) (hist) . . N Miami Institute for Human Genomics - University of Miami; 04:00 . . (+877) . . Handreff (Talk | contribs) (New page: ==Background== Located in Florida, the Miami Institute for Human Genomics is affiliated with the University there. They are a research institution, dedicated to finding the underlying gene...)
- (diff) (hist) . . Academic Institutions; 03:58 . . (+62) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Center for Behavioral and Decision Sciences in Medicine; 03:56 . . (+862) . . Handreff (Talk | contribs) (New page: ==Background== The Center for Behavioral and Decision Sciences in Medicine is a joint center between the University of Michigan and the Veterans Affairs Medical Center. They study the beha...)
- (diff) (hist) . . Other; 03:55 . . (+5) . . Handreff (Talk | contribs)
- (Deletion log); 03:55 . . Handreff (Talk | contribs) (deleted "Center for Behavioral and Decision Sciences in Med": content was: 'sd' (and the only contributor was 'Handreff'))
- (diff) (hist) . . Other; 03:52 . . (+56) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Alpha-1 Kids; 03:51 . . (+997) . . Handreff (Talk | contribs) (New page: ==Background== Alpha-1 Kids is a home based organization that was organized in 2006, to meet a rising need for support. They proudly send representatives to the Alpha-1 conferences, and ar...)
- (diff) (hist) . . Other; 03:48 . . (+18) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Unified to Support Metabolic Disorders; 03:45 . . (+1,021) . . Handreff (Talk | contribs) (New page: ==Background== Unified to Support Metabolic Disorders is a 501c3 nonprofit corporation that focuses on improving the lives of individuals with PKU through advocacy, education, support, awa...)
- (diff) (hist) . . Advocacy Organizations; 03:42 . . (+44) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Iona College; 03:41 . . (+1,123) . . Handreff (Talk | contribs) (New page: ==Background== Iona College was founded by the order of the Christian Brothers to educate young men, often the first in their families to attend college, in the Catholic higher education ...)
- (diff) (hist) . . Academic Institutions; 03:39 . . (+18) . . Handreff (Talk | contribs)
- (diff) (hist) . . N NE Dubowitz Syndrome Family Support; 03:38 . . (+944) . . Handreff (Talk | contribs) (New page: ==Background== NE Dubowitz Syndrome Family Support, begun in 1995, is an online support resource for those affected by the disorder. They are committed not only to their disorder, but to t...)
- (diff) (hist) . . Other; 03:35 . . (+41) . . Handreff (Talk | contribs)
- (diff) (hist) . . N In Need Of Diagnosis, Inc. (INOD); 03:31 . . (+956) . . Handreff (Talk | contribs) (New page: ==Background== Individuals with an undiagnosed medical conditions are a segment of the patient population that is in need of healthcare and research support. In Need of Diagnostics was cre...)
- (diff) (hist) . . Advocacy Organizations; 03:27 . . (+39) . . Handreff (Talk | contribs) (→Click here for recommendations on describing your organization. - )
11 October 2008
- (diff) (hist) . . Nm International Society for Neonatal Screening; 05:32 . . (+1,118) . . Handreff (Talk | contribs) (New page: ==Background== With participants from 60 countries and an internationally moving Presidency and Secretariat, the International Society for Neonatal Screening has been conducting its meeti...)
- (diff) (hist) . . Associação Brasileira dos Portadores da Doença de Gaucher (Gaucher Brazil); 05:32 . . (-3) . . Handreff (Talk | contribs) (Undo revision 3605 by Handreff (Talk))
- (diff) (hist) . . Associação Brasileira dos Portadores da Doença de Gaucher (Gaucher Brazil); 05:31 . . (+3) . . Handreff (Talk | contribs)
- (diff) (hist) . . Professional Societies; 05:27 . . (+50) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Sickle Cell/Thalassemia Patients Network; 05:23 . . (+962) . . Handreff (Talk | contribs) (New page: ==Background== The Sickle Cell/Thalassemia Patients Network started as a support group for adult patients at St. John's Hospital in Brooklyn, NY. They have grown into an organization dedi...)
- (diff) (hist) . . Other; 05:20 . . (+46) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Cutis Marmorata Telangiectatica Congenita (CMTC); 05:10 . . (+1,054) . . Handreff (Talk | contribs) (New page: ==Background== Since its inception in 1997, CMTC has become a worldwide authority on CMTC through networking and participating in organizations such as NORD, Eurordis, and Genetic Allaince...)
- (diff) (hist) . . Advocacy Organizations; 05:07 . . (+54) . . Handreff (Talk | contribs)
- (diff) (hist) . . N 23andMe; 04:50 . . (+1,221) . . Handreff (Talk | contribs) (New page: ==Background== 23andMe's mission is to be the world's trusted source of personal genetic information. The company was started in 2006, when the two founders were frustrated at the pace of...)
- (diff) (hist) . . Other; 04:45 . . (+13) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Genetic Science Learning Center - University of Utah; 04:44 . . (+1,038) . . Handreff (Talk | contribs) (New page: ==Background== The Genetic Science Learning Center is part of the University of Utah, in Salt Lake City. Their staff of 10 is focused on developing educational materials on basic genetics,...)
- (diff) (hist) . . Academic Institutions; 04:37 . . (+59) . . Handreff (Talk | contribs)
10 October 2008
- (diff) (hist) . . Alagille Syndrome Alliance; 16:22 . . (+358) . . Handreff (Talk | contribs)
- (diff) (hist) . . N Alagille Syndrome Alliance; 16:21 . . (+794) . . Handreff (Talk | contribs) (New page: ==Background== The Alagille Syndrome Alliance is a longstanding advocacy group, located in Tualatin, Oregon. The Alliance's purpose is to be the main networking resource and source of info...)
- (diff) (hist) . . Advocacy Organizations; 16:18 . . (+32) . . Handreff (Talk | contribs)
- (diff) (hist) . . N XLP Research Trust; 16:15 . . (+1,137) . . Handreff (Talk | contribs) (New page: ==Background== XLP is a rare genetic condition that often causes the need for a bone marrow transplant. Founded in 2005, the XLP Research Trust was started in order to raise international ...)
- (diff) (hist) . . Advocacy Organizations; 16:13 . . (+24) . . Handreff (Talk | contribs)
