The Collaboration, Education and Test Translation (CETT)
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[edit] Background
The Collaboration, Education and Test Translation (CETT) Program promotes the development of new genetic tests for rare diseases and facilitates the translation of genetic tests from research laboratories to clinical practices. The organization works to establish collaborations and provide education about each rare genetic disease, related genetic research, and the clinical impact of testing. CETT also supports the collection and storage of genetic and clinical data in publicly accessible databases to leverage the information into new research and treatment possibilities. Located in Seattle, Atlanta, and Washington, DC, CETT has reviewed and approved 32 applications that represent over 40 genetic conditions and genes. In May, the program will be featured in a special edition of Genetics in Medicine devoted to rare genetic testing.
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* Advocacy Organizations * Academic Institutions * Biotech Companies * Government Agencies * Genetic Alliance * Laboratories * Law/Consulting Firm * Patient Registries * Policy Organizations/Think Tanks * Professional Societies * Other
